Informaticopia

Monday, December 08, 2008

Patients Turn to Social Networking Sites To Find Disease Treatments

I could think of some nightmares with this?

Patients Turn to Social Networking Sites To Find Disease Treatments
Patients are using social networking Web sites to share their experiences with certain diseases and learn about potential treatments. One Web site, called PatientsLikeMe, aims to speed the pace of research by sharing patients' medical records. CBS' "Evening News

http://www.cbsnews.com/stories/2008/12/05/eveningnews/main4651246.shtml

3 Comments:

  • I'm not sure that this is so new or such a threat if we handle it properly. Particulary with unusual diseases or conditions, patients can be more expert than their physician, especially their GP.
    The question for me is how do doctors learn from patients online.

    By Blogger Anne Marie, at 10:11 AM  

  • Good to be part of this group

    By Blogger ElderWorld, at 12:55 PM  

  • DIPEx began several years ago in Oxford and has just redesigned and renamed its websites and has moved to: www.healthtalkonline.org & www.youthhealthtalk.org

    It would be interesting to know how it is being ramped up - funding based on increased use? To what extent has the pace of take up been dictated by specific ICT (user friendliness) and how much by awareness and willingness to participate in online communities. www.elderworld.com is building for care of older people.

    By Blogger ElderWorld, at 4:17 PM  

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